Jacob Treebeard Brown was born on August 18, 2003 with a very rare genetic condition called Ectodermal Dysplasia with Immunodeficiency or, for short, NEMO. After suffering a series of life-threatening infections, JT received a life-saving bone marrow transplant on December 6, 2006.
Since then, JT has battled a variety of transplant-related complications. The most serious of these is Graft-vs.-Host-Disease, for which he travels to Cincinnati every three weeks for cutting-edge photopheresis treatments at the Children's Hospital there.
Many kind and generous and wonderful people have walked beside us on our journey, and we are grateful for their continued company.
The blog traces our journey and will be updated monthly in 2011.
From birth to the transplant decision:
a video Prologue to Jacob's transplant miracle...